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Expertise

Optimized, ethical and transparent data management

Guidance for acquiring available data on health care and social service performance, research and innovation.

Our services

  • Data platform services
    • Support for requests to access care trajectory data from the TorSaDE cohort
  • Data storage consulting
  • Support for consent policies on data sharing and storage, as well as transparency.
    • CLARET (Transparency- and consent-driven ethical framework designed to share research data)
  • Support on using data extraction, translation, organization and structuring tools
    • Data security guidelines
      • Data collection, destruction, storage and backup
      • Access, analysis and sharing of results
    • DEDIP (list of criteria to guide extraction of essential data to describe population interventions)
    • Ontologies
    • PARS3 (Learning platform designed to link the queries of care and research teams with information systems specific to each data custodian. It allows data to be transmitted securely to other secure third-party systems through which the requesting unit can access it.)
  • Training and communities of practice on the ESPACE PROXIMITÉ platform

Some services and tools may not be available currently for legal reasons.

Our communities of practice

Patient partners community expériences

The expériences community includes patient partners actively involved in the governance of the patient partnership and strategy as well as directly in research teams. It brings together various members of the Québec health and social services network, including researchers. This initiative comes from the Partnership Axis of the Unité de soutien SSA Québec and the Centre of Excellence in Partnership with Patients and the Public (CEPPP).

See details and join the community

Community of fellows

This community gathers FRQ fellows who are participating in the complementary training and capacity building program on patient-oriented research, the learning health system, trajectories of care and the quintuple aim, in partnership with the Fonds de recherche du Québec.

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News

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Quebecers believe that the well-being of health care teams and science should guide health care decisions above all else

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Read more about Quebecers believe that the well-being of health care teams and science should guide health care decisions above all else

Webinar and survey: Implications of a lack of access to information for public health

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Read more about Webinar and survey: Implications of a lack of access to information for public health

The Unité de soutien SRAP du Québec announces its COVID-19 services

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Read more about The Unité de soutien SRAP du Québec announces its COVID-19 services

A new name and a new website!

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Read more about A new name and a new website!

Deliverables and tools

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Rapid and Rigorous TransCultural Adaptation (RR-TCA) methods

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Read more about Rapid and Rigorous TransCultural Adaptation (RR-TCA) methods

CLARET

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Read more about CLARET

PARS3

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Read more about PARS3

ReaffectMD designated as the official Quebec platform for tracking and reassigning medical staff during the COVID-19 pandemic

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Read more about ReaffectMD designated as the official Quebec platform for tracking and reassigning medical staff during the COVID-19 pandemic

Publications

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Unité de soutien SRAP du Québec has published its 2014–2021 activity report for the community

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Read more about Unité de soutien SRAP du Québec has published its 2014–2021 activity report for the community

CLARET project on meta consent to use health data in research: preliminary results

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Read more about CLARET project on meta consent to use health data in research: preliminary results

Videos

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Find out what's a learning health system in 60 seconds

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Read more about Find out what's a learning health system in 60 seconds

Themes

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Consent

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Read more about Consent

Québec's health system

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Read more about Québec's health system

Service request

When you apply for support from the Unité de soutien SSA Québec, you are taking part in the emergence of a learning health system (LHS). We offer three types of support: training, consultation and tools.

Team

Portrait of Annabelle Cumyn.

Annabelle Cumyn

Ethics

Portrait of Anne-Marie Cloutier.

Anne-Marie Cloutier

Codirection Patient Partner – Axis Data Management

Portrait of Jean-François Éthier.

Jean-François Éthier

Scientific codirection – Axis Data Management

Newsletter

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