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History

Since 2014, the Unit has been building valuable partnerships and creating beneficial synergies in patient-oriented research (PAR). It has become a leading resource in Quebec in terms of support for learning systems.

The project to create a SPOR support unit in Quebec emerged through an initiative of the Canadian Institutes of Health Research (CIHR). SPOR (Strategy for Patient-oriented Research) stems from a priority introduced in the CIHR’s IPPH 2009–2014 Strategic Plan. This strategy was the result of a broad consultation conducted with governments, patients, individuals and organizations working in research and health and social services, including decision-makers, academic institutions, charities and the private sector.

Recognition, Promotion and Development

Our mandate has driven a number of developments and choices:

  • Recognizing the first-hand knowledge of patients, the public and all other concerned parties
  • Promoting research in real world contexts
  • Developing implementation science
  • Adopting the learning health system concept (LHS)
Fulfilling Our Ambitions

POR gives us the means to achieve our ambitions by making it possible to establish a LHS.

This vision pushes us to embrace the quadruple aim and mobilize researchers and health and social services, with and for the benefit of the public, in an effort to improve:

  • Patient experience and outcomes
  • The health of the general population
  • The efficiency of the system
  • The well-being of health and social service workers

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Eleven units have been created (Alberta, British Columbia, Manitoba, the Maritimes, Nunavut, Ontario, Quebec, Saskatchewan, Northwest Territories, Newfoundland and Labrador, and Yukon).

Dr. Marie-Dominique Beaulieu was the Unit’s first Scientific Director from 2014 to 2017. She was also the general director for two years.

The Unit received funding and built its team and service proposal with its partners the MSSS, the FRQ, the RUISSS, McGill University, Université de Montréal, Université Laval and Université de Sherbrooke. It created its first cohort of grant recipients in partnership with the Fonds de recherche du Québec – Santé (FRQS). Eleven people received support.

The Unit began to take shape. An agreement between the institutions was signed (the four universities with a faculty of medicine) and a governing framework was adopted.

A target grant competition program was developed in collaboration with the FRQ and the RUISSS.

Ginette Bélec was named general director. Subsequently:

  • The Unit launched a demonstration project for a learning health system
  • Acfas organized a conference on patient-oriented research titled Conditions d’exercice et de réussite de la recherche axée sur le patient
  • A joint working committee on the use of clinical data from electronic medical records was established in partnership with the INESSS.

  • The RSIJ competition, Aire ouverte, was launched in partnership with the MSSS and FRQS.
  • A targeted community care program was launched in partnership with the MSSS and FRQS.
  • Unit symposium on access to data

The Unit hired an outside firm to carry out a mid-term assessment. Changes were also made at the management level:

  • Dr. Alain Vanasse was appointed as the designated head researcher, taking over as scientific director
  • Mathieu Trépanier (in memoriam) was named general director
  • Joe Guillaume Pelletier was named general director
  • Creation of CPPCP-RSQ (Communauté de pratique des patientes, patients, citoyennes et citoyens en recherche du Québec)
  • Launch of the Priorité patient competition in partnership with Oncopole
  • Final assessment by an outside firm
  • Extension of Phase 1 granted

In 2020, Université de Sherbrooke became the Unit trustee. The executive team moved to the Université de Sherbrooke’s Longueuil campus.

  • New professionals joined the executive team (project management, communications and finance)
  • New areas of expertise in LHS. See areas of expertise

Dr. Antoine Groulx was appointed as the designated scientific director and transitioned into the role alongside Dr. Alain Vanasse. Over the following months, the Unit took on a number of key files:

  • Second extension of Phase 1
  • Submission of a renewal proposal to the CIHR
  • COVID-19 pandemic: adjustment of the service proposal
  • Name change: Unité de soutien SRAP du Québec becomes the Unité de soutien SSA Québec