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Canada-wide survey of patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs)

As part of a project to document the use of PROMs and PREMS in Canada, the ISOQOL Canada-PRO special interest group is launching a survey of anyone who has used patient-reported outcome measures and/or patient-reported experience measures (PROMs, PREMs) in their field in Canada.

The objectives of the survey are as follows:

  1. Identify the different types of PROMs and PREMs used in Canada 
  2. Explore the objectives for using these measures in various contexts in Canada 
  3. Explore approaches to data collection and use in various contexts

Have you worked with patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs)? 

PROMs/PREMs are standardized questionnaires filled out exclusively by patients and used to produce measurements or scores for research, practice and policies.  

If you have used these types of tools, you can be part of this important study designed to identify the pros and cons of using of PROMs/PREMs to improve patient-oriented research in Canada. 

What does it entail? 

Spend 10 to 15 minutes filling out an online questionnaire on the following secure webpages:

Who is conducting this research? 

Past and current presidents of the CAN-PRO special interest group of the International Society of Quality of Life Research

How will the results be used? 

Those leading the survey hope to share the results with the largest number of people working on patient-oriented research in Canada. This includes funders, decision-makers and clinical teams that use patient-oriented data to make decisions. 

Can I share the invitation?

Certainly. Since the goal is to increase the use of these measures, survey organizers are hoping people will share it with colleagues, including people working in research and those using the PROMs/PREMs system.  

If you have any questions, please contact Dr. Sara Ahmed at sara.ahmed@mcgill.ca.  

Team

Nora Fayed, OT, Ph.D., Queen’s University
Ayse Kuspinar, Ph.D., McMaster University
Fatima Al Sayah, Ph.D., University of Alberta
Ana Maria Moga, PT, Ph.D. (c), McGill University
Susan Bartlett, Ph.D., McGill University
Sara Ahmed, PT, Ph.D., McGill University