MND Living Labs: Innovation in research to facilitate transitions and trajectories for people living with a major neurocognitive disorder and their relatives

The Unité de soutien SSA Québec is contributing to the Living Labs on Major Neurocognitive Disorders in order to integrate four trajectory improvement projects into a learning healthcare system perspective.

This grant program is offered by the Ministère de la Santé et des Services sociaux du Québec (MSSS) in partnership with the Unité de soutien au système de santé apprenant du Québec (Unité de soutien SSA Québec) and the Fonds de recherche du Québec – Santé (FRQS).

  • 4.75 MM
  • Launched in September 2021 by the MSSS, the FRQ-S and the Unit
  • Objectives:
    • Improve the organization of care and services and facilitate transitions in the lives of people living with a major neurocognitive disorder and their families, from the moment of identification, in order to improve their living conditions.
    • Empower people working in health and social services (care, management, community) to implement new practices or reinforce existing ones, for the benefit of these people and their loved ones.

The Unit’s contribution

As part of the Living Labs program on major neurocognitive disorders, the Unit helped the teams prepare their applications to ensure that they were in line with the perspective of a learning healthcare system and, more specifically, that they had all the tools they needed to integrate users into the definition and execution of their research project.

The Unit makes its expertise available to the selected teams throughout the implementation of their projects. Consulting expertise tailored to the projects and needs of the research teams is offered in the following areas, in particular:

  • Learning Health System
  • Patient engagement
  • Data Management Optimization
  • Capacity Building
  • Health economics
  • Data to knowledge
  • Equity, diversity and inclusion
  • Indigenous Health
  • PREMs (patient-reported experience measures)
  • PROMs (patient-reported outcomes measures)

4 projects (1/RUISSS)

Here are the 4 improvement projects selected and supported by the Unit. Please note the titles are a free translation from French­.

  • Development, implementation and evaluation of a user-driven continuous improvement program targeting care transitions experienced by seniors living with a major neurocognitive disorder and their family caregivers, Patrick Archambault, Université Laval
  • Digital health and the care and service trajectories of people living with a major neurocognitive disorder and their family caregivers: A participatory and multipartite approach to adapted and integrated telehealth, Olivier Beauchet, Université de Montréal
  • Fostering collaboration between specialized ambulatory geriatric services for better complementarity and continuity in the trajectory of people living with a major neurocognitive disorder and their loved ones, Véronique Provencher, Université de Sherbrooke
  • Living transitions laboratory (Transilab Laval-ROSA) for people living with a major neurocognitive disorder, Isabelle Vedel, McGill University

What are neurocognitive disorders?

Learn more about the program (in French)

What is a living lab?

Read the Ministry’s press release (in French)