Make a request
Offre

L’offre de service de
l’Unité de soutien
SSA Québec

Quebec’s LHS leader

Services offered

The Unit offers patient-oriented research in each of the four phases of the Learning Health System cycle.

Our services are available in three forms:

  • Training
  • Consultation
  • Tools

They are deployed through four LHS-RUISSS teams and the Unit’s components. Learn about the team

Why?

To improve Quebec’s health care system and the population’s care pathways by making the four-pronged objective a common goal.

How?

The Unit deploys its services through its LHS Portal. The kind of requests addressed by the LHS Portal vary:

Who is it for?

The Unit provides support to any person or organization working in health care and social services in Quebec:

  • Patients
  • Decision-makers
  • Research staff
  • Clinicians
  • Other SPOR entities
  • Not-for-profits
  • Companies

This offer for applied support creates innovations.

Health and social service patient-oriented partnership

  • Module 101 – Fundamentals of the patient-public partnership (E/F), length: 1.5 hr.
  • Module 201 – Patient partnerships in health research: First steps (E/F), length: 1.5 hr.
  • Module 201 – Patient partnerships in health management: First steps
  • Module 301 – Consolidating the patient partnership – Evaluation of practices and continuous improvement
  • Module: Recruiting patient partners for research, length: 3 hr.
  • Module: Evaluation of the research patient partnership, length: 1.5 hr.
  • The patient, learning health system partner, length: 1 hr.
  • Workshop on systematic review stages – Involvement of patient partners, length: 2 hr.
  • Training on key concepts for a realistic approach for patient-oriented research
  • Training in organizational participatory research (OPR)
  • Understanding research (videos), (E/F), length 3 hr.

Support for implementation and issues related to public/patient partnerships

  • Advice for implementing a partnered research strategy
  • Support for the implementation of a partnered research strategy (recruitment of patients and members of the public as research partners, facilitation of thematic meetings with the perspective of co-construction)
  • Advice on specific issues related to partnered research (ethics, remuneration, partnership operationalization, etc.)

Implementing partnerships in a clinical setting

Support for the identification and recruitment of patient partners and members of the public

Training of patient partners, members of the public and professional research staff

Coaching of patient partners, members of the public and professional research staff

Evaluation of the process and impacts of patient/public partnered research

Support for the implementation of information monitoring on a subject related to patient-oriented research – eSRAP

Guiding patient/public partnerships

  • Handbook on the Strategy for a Research Partnership with Patients and the Public
  • Patient involvement mandate
  • Guidelines for the financial compensation of patient partners

Guiding organizational participatory research

  • OPR, organizational participatory research guide
  • OPR, organizational participatory research questionnaire

Evaluating partnerships

  • CoPeval, Community of Practice evaluation questionnaire
  • Partnership evaluation toolkit

Diversifying partnerships

  • ENGAGE, participatory methods and visual and auditory tools to engage vulnerable populations in research
  • Espace Proximité, training and knowledge distribution platform

Awareness-building and promoting partnerships

  • Video, explanation of how health data research can improve care
  • Video, explanation of consent for using health data in research
  • Video, what does it mean to be a patient partner?
  • Video, patient-oriented research during the pandemic: how and why? (also applies in contexts other than the pandemic)

Other items

  • Understanding research (explains basic health research terms in simple language)
  • DDS (interaction application that provides an integrated overview of all frontline services in Quebec)

Data management

  • Training on mixed methods
  • Introduction to qualitative research, length: 3 hr.
  • Data collection methods in qualitative research, length: 3 hr.
  • Tool validation

Data platform services

  • Support to apply for access care pathway data from the TorSaDE cohort (data from respondents to different cycles of the Canadian Community Health Survey, and medical and administrative data)

Consultation related to data storage

Support for consent policies for the sharing and storing of data as well as for transparency issues

Support for the use of tools for data extraction, translation, organization and structuring

Some services and tools may not be available currently for legal reasons.

Extract, translate, organize, structure data

  • Guidelines for data security (data collection/destruction/storage/saving and access/analysis/sharing)
  • DEDIP (list of criteria to guide extraction of essential data to describe population interventions)
  • HADO ontology, administration of health care
  • PDRO ontology, prescribing of medication
  • LABO ontology, DEMO laboratory results, identification of people in the health care system
  • MOPIQ ontology, Quebec computerized prescriptions
  • PARS3 (Learning platform designed to link the queries of care and research teams with information systems specific to each data custodian. It allows data to be transmitted securely to other secure third-party systems through which the requesting unit can access it)
  • CLARET (Transparency- and consent-driven ethical framework designed to share research data)

Expanding the use of data

Training workshop on health economics and health economics evaluation (17 Écosanté training videos)

Methodology development and support services

  • Support for the development or adaptation and validation of statistical methods (Bayesian methodology, transcultural adaptation of tools, questionnaire creation and validation, etc.)
  • Support for qualitative methods
  • Support for mixed methods
  • Support for other methodologies or methods

Support for some artificial intelligence disciplines

Support for economic evaluation (data collection, analysis and interpretation)

Some services and tools may not be available currently for legal reasons.

Platform trial interfaces and DSQ interfaces

  • Web interface for platform trials (design and simulation of adapted clinical trials to determine sample size and requirements for measures to evaluate competing treatment alternatives)
  • DSQ interface (facilitates use of the Dossier Santé Québec and offers practical solutions for organizing data in a clinical context)

Data source

  • Selection-algorithm directories for TorSaDE—usage fees
  • EODQ (measurement of questionnaire origin and development)

Evaluate, validate, generate questionnaires

  • ATC_RR (12 steps for transcultural adaptation of questionnaires while retaining measurement qualities)
  • BayesiCALLY (quickly validate an ad hoc questionnaire when its sample is still small)

PROMs translated into French (patient-reported outcome measures)

Mobilize and use knowledge

  • Bibliographic database of studies on the economic evaluation of scale-up strategies

Économie de la santé

  • CoPaQ (tool to measure health care costs for patients)

Change management

  • Training workshop on end-of-grant knowledge-transfer, length: 5 hr.
  • Strategic aspects of communication between researcher and decision-makers
  • Training workshop on implementing innovation in health care and social services, length: 3 hr.
  • Training workshop on evaluating the potential for scaling up health innovations, length: 1.5 hr.
  • Design of shared decision-making aids in health care (15 videos), length: 2 hr.
  • Training workshop on deliberative knowledge transfer workshops, length: 3 hr.
  • Training workshop on deliberative workshops, length: 2 days
  • Tool validation
  • Knowledge transfer summer school, length: 3 days
  • Literature reviews: why you get lost and how to find yourself again
  • Basic training workshop on rapid reviews, length: 3 hr.
  • Basic training workshop on Cochrane systematic reviews, length: 3 days
  • Introduction to systematic review and meta-analysis, length: 3 hr.
  • Protocol review
  • Understanding research (videos), (E/F), length 3 hr.

Change management support

  • From planning the desired change, to selecting the care outcome and reviewing publications, to implementing change and continuous improvement

Support for knowledge transfer

  • Implementation consulting and support for:
    • literature search in electronic databases and/or grey literature
    • Cochrane and other kinds of systematic review, and rapid review
    • meta-analysis of intervention studies, diagnostic studies, observational studies, network meta-analysis studies
    • knowledge transfer plans
    • deliberative works for knowledge transfer
    • involving decision-makers in POR

Support for the design of tools to aid in decision-making

Support for implementation of information monitoring on a given subject

Support for the development of a literature review

Making informed decisions

  • Literature review toolbox
  • ATCER (assigns a probability that publications are scientific studies)
  • CATeval (facilitates study quality appraisal)
  • eSRAP (collaborative monitoring platform to stay up to date on the latest scientific publications—usage fee)

Evaluate, validate, generate questionnaires

  • ATC_RR (12 steps for transcultural adaptation of questionnaires while retaining measurement qualities)
  • EODQ (measurement of questionnaire origin and development)

Disseminate knowledge

  • Guide for drafting a research practice dissemination plan

Mobilize and use knowledge

  • Evaluation tool for the potential to scale up health care innovations
  • Periodical bibliography database on implementing health care innovations.

Demande de service

Faire une demande de soutien à l’Unité de soutien SSA du Québec, c’est prendre part à l’émergence d’un système de santé apprenant (SSA). Nous proposons trois types de soutien : des formations, de la consultation et des outils.