PREMs and PROMs Toolkit: Patient-reported outcome and experience measures
Although most professional or patient organizations claim to incorporate the concept of Patient-Reported Outcome Measures (PROMs) or Patient-Reported Experience Measures (PREMs), how the information is collected is not necessarily adequate. To be compliant, PROMs and PREMs must be measured using scientifically validated tools and must be completed by patients. Let's see together the definition of PROMs and PREMs and what characterizes them.
What is a Living Lab?
An innovative approach, an advantageous research method and a key step in the continuous improvement of our health care system. In a living laboratory, the people who benefit from the care and services become stakeholders, on the same level as the other parties involved
Activity Report 2021-2022 by the Unité de soutien SSA Québec
We are excited to share with you what our team has accomplished in the year 2021-2022.
Equity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills
The co-construction of the ENGAGE digital platform, a project supported by the Unité de soutien SSA Québec, was the subject of a scientific article.
Expériences Magazine: living with illness and care
Discover the issues of Experiences magazine, published by the community of patient partners of the same name.
The Unit contributed to the Portrait sur les politiques publiques de l’Observatoire des tout-petits
In April 2021, the Observatoire des tout-petits published its first public policy portrait. It provided ideas on what to do for early childhood development in Quebec and the role of public policy.
Unité de soutien SRAP du Québec has published its 2014–2021 activity report for the community
It’s been six years already! Since its inception, Quebec’s Unité de soutien de la Stratégie de recherche axée sur le patient (SRAP) has built valuable partnerships and beneficial synergies in patient-oriented research (POR). It has become a leading resource in Quebec for supporting learning systems.
How to meaningfully and equitably involve patients and the public in scaling up: upcoming publication of a study protocol
Members of our Knowledge Translation component published a study protocol which will allow for a better understanding of how to involve patients and the public in a significant and equitable manner in scale-up initiatives for a sustainable health care and social services network (RSSS).
CLARET project on meta consent to use health data in research: preliminary results
CONECT-6: the first case-finding tool to rapidly identify patients suffering from chronic disease with complex health needs
Dr. Catherine Hudon and her team published a study entitled “CONECT-6: a case-finding tool to identify patients with complex health needs” on the development and validation of the tool in BMC Health and Services Research. This approach will allow for early intervention for those at risk of high use of emergency services.