Expertise

Patient-Public-Organizational Partnership

Deploy regional expert branches for the patient-public-organizational partnership in the four RUISSSs and provincial resources to support the partnership. Offer coaching.
ssa_partenariat_illustration

In a learning health system, all forces come together to eliminate working in isolation. There is a partnership between:

  • Research
  • Care
  • Social Services
  • Management
  • The population

Our services

  • Support patient-public partnership implementation and assist in resolving issues
  • Help identify and recruit patient partners and members of the public
  • Train patient partners, members of the public and professional research staff
  • Coach patient partners, members of the public and professional research staff 
  • Assess the process and benefits of the research partnership with patients and the public
  • Support the implementation of partnerships in clinical settings
  • Tools to guide patient-public partnerships
  • Tools to guide organizational participatory research
  • Tools to raise awareness of the partnership and evaluate, diversify and promote it
  • Tools to facilitate understanding of research and access to frontline health services
  • Training and communities of practice on the ESPACE PROXIMITÉ platform

Our trainings

See details in french

Our communities of practice

Patient partners community expériences

The expériences community includes patient partners actively involved in the governance of the patient partnership and strategy as well as directly in research teams. It brings together various members of the Québec health and social services network, including researchers. This initiative comes from the Partnership Axis of the Unité de soutien SSA Québec and the Centre of Excellence in Partnership with Patients and the Public (CEPPP).

See details and join the community

Community of fellows

This community gathers FRQ fellows who are participating in the complementary training and capacity building program on patient-oriented research, the learning health system, trajectories of care and the quintuple aim, in partnership with the Fonds de recherche du Québec.

See details

Marie-Ève Poitras, Inf. Ph. D.

For me, the patient partnership is the very essence of health research. It fulfills my desire as a clinician and researcher to help improve the quality of care for and with patients! It is essential in every way and at all stages of the research process.

Are you a patient?

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News

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Quebecers believe that the well-being of health care teams and science should guide health care decisions above all else

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Read more about Quebecers believe that the well-being of health care teams and science should guide health care decisions above all else

Webinar on ENGAGE: a project to involve low-literacy patients in research

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Read more about Webinar on ENGAGE: a project to involve low-literacy patients in research

The Unité de soutien SRAP du Québec announces its COVID-19 services

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Read more about The Unité de soutien SRAP du Québec announces its COVID-19 services

A new name and a new website!

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Read more about A new name and a new website!

Deliverables and tools

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An Indigenous Patient Circle is launched in Quebec

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Read more about An Indigenous Patient Circle is launched in Quebec

ENGAGE: participatory methods and visual and auditory tools to get vulnerable populations involved in research

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Read more about ENGAGE: participatory methods and visual and auditory tools to get vulnerable populations involved in research

Rapid and Rigorous TransCultural Adaptation (RR-TCA) methods

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Read more about Rapid and Rigorous TransCultural Adaptation (RR-TCA) methods

CLARET

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Read more about CLARET

Publications

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Expériences Magazine: living with illness and care

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Read more about Expériences Magazine: living with illness and care

Unité de soutien SRAP du Québec has published its 2014–2021 activity report for the community

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Read more about Unité de soutien SRAP du Québec has published its 2014–2021 activity report for the community

How to meaningfully and equitably involve patients and the public in scaling up: upcoming publication of a study protocol

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Read more about How to meaningfully and equitably involve patients and the public in scaling up: upcoming publication of a study protocol

CLARET project on meta consent to use health data in research: preliminary results

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Read more about CLARET project on meta consent to use health data in research: preliminary results

Videos

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Find out what's a learning health system in 60 seconds

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Read more about Find out what's a learning health system in 60 seconds

COVID-19 video – Being a caregiver who contributes to research: how and why?

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Read more about COVID-19 video – Being a caregiver who contributes to research: how and why?

COVID-19 video: Patient-oriented research in a pandemic: how and why?

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Read more about COVID-19 video: Patient-oriented research in a pandemic: how and why?

COVID-19 video: What does it mean to be a patient partner during the pandemic?

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Read more about COVID-19 video: What does it mean to be a patient partner during the pandemic?

Themes

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Consent

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Read more about Consent

Québec's health system

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Read more about Québec's health system

Service request

When you apply for support from the Unité de soutien SSA Québec, you are taking part in the emergence of a learning health system (LHS). We offer three types of support: training, consultation and tools.

Team

Portrait of Samira Amil.

Samira Amil

Codirection Patient Partner – Partnership branch of the SSA-RUISSS team Université Laval

Portrait of Antoine Boivin.

Antoine Boivin

Scientific codirection – Axis Partnership

Portrait of Catherine Wilhelmy.

Catherine Wilhelmy

Codirection Patient Partner to the Scientific Direction

Portrait of Marie-Dominique Poirier.

Marie-Dominique Poirier

Codirection Patient Partner – Axis Capacity Building

Portrait of Marie-Pierre Gagnon.

Marie-Pierre Gagnon

Manager – Partnership branch of the SSA-RUISSS team Université Laval

Portrait of Paul Nadeau.

Paul Nadeau

Patient Partner to the Executive Team

Portrait of Philippe Karazivan.

Philippe Karazivan

Manager – Partnership branch of the SSA-RUISSS team Université de Montréal

Portrait of Sonia Lussier.

Sonia Lussier

Codirection Patient partner – Axis Data to knowledge / Partnership branch of the SSA-RUISSS Mcgill team

Portrait of Sylvain Bédard.

Sylvain Bédard

Cocoordination Patient Partner – Axis Partnership

Portrait of Vincent Dumez.

Vincent Dumez

Codirection Patient Partner – Axis Partnership

Portrait of Myriam Fournier-Tombs.

Myriam Fournier-Tombs

Cocoordination – Axis Partnership

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