COVID-19 has disrupted life in Quebec and around the world. Because our vision supports a learning health system—one that integrates research into practice and bases decision-making on the experiences of patients, health and social services professionals and managers—we are more determined than ever to support a shift in the culture of our health care system.
The Unité de Soutien SSA Québec is connected with the Quebec COVID – Pandemic Network (QCPN), an initiative of the Fonds de recherche du Québec – Santé. The main objective of the QCPN is to create an environment of close collaboration to coordinate research efforts, prioritize actions and accelerate discoveries and their application to infections caused by SARS-CoV-2.
The Unité de Soutien SSA Québec, in collaboration with its specialists, offers a range of tools, expertise and training dedicated to supporting patient-oriented research in the context of this pandemic.
Infolettre
Abonnez-vous! Une référence en système de santé apprenant (SSA) au Québec.
Learn about the subject
Since March 2020, COVID-19 has been all over the news. The pandemic has been the source of much reflection and a number of useful projects. It is important to draw lessons from this experience for the future.
ENGAGE: participatory methods and visual and auditory tools to get vulnerable populations involved in research
How can you get vulnerable people and those with low literacy levels involved in health research? How can you reduce barriers between university researchers and members of the community? Co-built by community-based organizations and members of the Canadian and international research communities, ENGAGE is a bilingual website offering participatory methods, as well as visual and auditory tools.
Écosanté: enhancing knowledge, competencies and collaboration opportunities related to health economics
Accès RECHERCHE
ACCÈS RECHERCHE is a platform for accessing research facilitation services, developed in partnership with Réseau-1 Québec, to provide research capacity to frontline clinical settings, as well as advisory services to researchers on methodology, clinical realities, writing protocols, recruitment, dissemination, letters of support and cost estimates.
CoPaQ: Measuring health care costs for patients
Tool to measure health care costs for patients.
Rapid and Rigorous TransCultural Adaptation (RR-TCA) methods
Structured approach for the translation and transcultural adaptation of various questionnaires. High potential for use in Indigenous health care.
CLARET
Transparency- and consent-driven ethical framework designed to share research data.
TorSaDE
Toolbox to query a cohort of the population on care trajectories and a research community including researchers from the four RUISSSs.
PARS3
Learning platform designed to link the queries of care and research teams with information systems specific to each data custodian. It allows data to be transmitted securely to other secure third-party systems through which the requesting unit can access it.
The Unit contributed to the Portrait sur les politiques publiques de l’Observatoire des tout-petits
In April 2021, the Observatoire des tout-petits published its first public policy portrait. It provided ideas on what to do for early childhood development in Quebec and the role of public policy.
Dr. Pierre Pluye received the NAGS Doctoral Teaching Award
Unité de soutien SRAP du Québec has published its 2014–2021 activity report for the community
It’s been six years already! Since its inception, Quebec’s Unité de soutien de la Stratégie de recherche axée sur le patient (SRAP) has built valuable partnerships and beneficial synergies in patient-oriented research (POR). It has become a leading resource in Quebec for supporting learning systems.
How to meaningfully and equitably involve patients and the public in scaling up: upcoming publication of a study protocol
Members of our Knowledge Translation component published a study protocol which will allow for a better understanding of how to involve patients and the public in a significant and equitable manner in scale-up initiatives for a sustainable health care and social services network (RSSS).
CLARET project on meta consent to use health data in research: preliminary results
CONECT-6: the first case-finding tool to rapidly identify patients suffering from chronic disease with complex health needs
Dr. Catherine Hudon and her team published a study entitled “CONECT-6: a case-finding tool to identify patients with complex health needs” on the development and validation of the tool in BMC Health and Services Research. This approach will allow for early intervention for those at risk of high use of emergency services.
Learning resulting from a multicentric study: a new article by Marie-Eve Poitras and her team as part of the Unité de soutien SRAP du Québec demonstration project
Jason Robert Guertin et al. publish a systematic review of economic evaluations based on observational data in cardiology
Proper usage of sex and gender in studies of shared decision-making intervention: an assessment by Dr. Lionel Adisso and the Unité de soutien SRAP du Québec
Caregiving and decision regret: Dr. Hélène Elidor publishes a systematic review in collaboration with the Unité de soutien SRAP du Québec
New shared-decision aid for high users of health care services and their care teams
ReaffectMD designated as the official Quebec platform for tracking and reassigning medical staff during the COVID-19 pandemic
As of April 2020, the ReaffectMD platform, developed in collaboration with the Data Access component of the Unité de soutien SRAP du Québec, was designated as the official Quebec platform for tracking and reassigning medical staff (physicians) across the province to meet emerging needs related to COVID-19.
The Unité de soutien SRAP du Québec and the Quebec College of Family Physicians have collaborated to evaluate the scalability of innovations in primary care
Dr. Anaïs Lacasse creates a gender index thanks to TorSaDe
On September 14, 2020, Dr. Anaïs Lacasse, associate professor in the health sciences department at the Université du Québec en Abitibi-Témiscamingue (UQAT), presented her gender index in a webinar organized by the Quebec Population Health Research Network (QPHRN).
Our postdoctoral fellow Amédé Gogovor and his colleagues publish an analysis on the challenges and solutions of integrating sex and gender considerations in knowledge translation
Webinar on ENGAGE: a project to involve low-literacy patients in research
On June 12, 2020, Christine Loignon, associate professor at the Université de Sherbrooke, Sophie Dupéré, associate professor at Université Laval, and Caroline Leblanc, doctoral student in health sciences at the Université de Sherbrooke, will present the ENGAGE project in a webinar organized by the Quebec Population Health Research Network (QPHRN), under the Social Health Inequalities and Equity grouping.
A former Unité de soutien SRAP du Québec fellow will lead the Patient-Reported Indicator Surveys (PaRIS) initiative in Quebec
Fonds de recherche du Québec scholarship: a focus on patient-oriented research
Since 2014, the Unité de soutien SRAP du Québec has administered a fellowship program in partnership with the FRQ. This program is targeted at masters and doctoral students, postdoctoral fellows, early career researchers and health and social services professionals.
How knowledge exchange in primary health care research can benefit people with diabetes: A qualitative study was presented by an SRAP fellow
Webinar and survey: Implications of a lack of access to information for public health
Dr. Alain Vanasse is a recipient of the Innovation Québec – Janssen Partnership
Dr. France Légaré has contributed to a document produced by the Observatoire européen des systèmes et des politiques de santé
Best practices to maintain patient engagement in virtual mode
COVID-19 video – Being a caregiver who contributes to research: how and why?
Impact of printed educational materials for health professionals: a new Cochrane systematic review with support from the Unité de soutien SRAP du Québec
COVID-19 video: Patient-oriented research in a pandemic: how and why?
Call for applications: seeking postdoctoral fellow
COVID-19 video: What does it mean to be a patient partner during the pandemic?
The Unité de soutien SRAP du Québec announces its COVID-19 services
Appointment of a designated scientific director
Postdoctoral fellowship in capacity building and professional development – call for applications
Canada-wide survey of patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs)
As part of a project to document the use of PROMs and PREMS in Canada, the ISOQOL Canada-PRO special interest group is launching a survey of anyone who has used patient-reported outcome measures and/or patient-reported experience measures (PROMs, PREMs) in their field in Canada.
A new name and a new website!
A new name and a new website! Unité de Soutien SRAP du Québec has become the Unité de soutien SSA Québec, placing the learning health system (LHS) at the centre of its mandate.
The Quebec team leading the international PaRIS-OECD survey publishes a white paper
The Unit helped fund the PaRIS-OECD Quebec survey and three of the white paper’s authors, Marie-Eve Poitras, Sara Ahmed and Maude Laberge, are part of its team.
The Unité de soutien SSA Québec helps to develop a new decision aid for lung cancer screening in Quebec
Under the leadership of Dr. Hervé Zomahoun and Dr. France Légaré, our team was able to rally family physicians, pneumologists, nurses, respiratory therapists, researchers, public servants, members of the public, decision-makers and other key people around a consensus, which led to the drafting of guidelines to be used in the creation of a decision aid to help people who are eligible for lung cancer screening make an informed choice about whether or not to undergo screening.
Quebec decision aid tool for lung cancer screening
A decision aid tool is available online for clinicians and people who are eligible for lung cancer screening in Quebec. Its aim is to help those who qualify make an informed decision about whether or not to undergo screening. The Unité de soutien SSA Québec helped with its development.