The objective of the PaRIS survey is to develop and implement a new generation of health care system performance indicators based on patient-reported outcome measures (PROM) and patient-reported experience measures (PREM), thereby providing standardized information internationally about what is most important for patients.

This survey, which was conducted in 17 countries, looks at PREMs and PROMs for adults living with one or several chronic conditions and who are managed in primary care with the aim of identifying the indicators that are common to all countries. The PaRIS initiative aims to fill the current gap in primary care by giving a voice to patients and measuring what is important to them in order to offer them a better quality of life and health.

Source: White paper: Les indicateurs de santé et d’expérience rapportés par les patients et les patientes. Conduire le changement pour l’amélioration des soins, p. 11

PaRIS is designed to fill in major gaps in primary health care, by raising questions about:

  • access to health care and wait times
  • quality of life
  • pain
  • physical function
  • psychological well-being

This survey will also raise further questions related to provincial and regional priorities, and provide an opportunity for Quebec to generate complementary data to improve practices and actions in community care. The survey will be led by researchers involved in the Accès recherche platform, a collaboration between the Unit and Réseau-1 Québec, established in the first SPOR phase. It covers approximately 50 Quebec clinics with an aim to facilitate research in actual outreach clinics.

During the survey, participants will also be asked to consent to survey data being combined with other clinical and administrative data to analyze and interpret care trajectories based on PREM and PROM indicators. The nine participants will also be asked to take part in the creation of a cohort—the only one of its kind in the world—designed to study care trajectories. This cohort will supplement the TorSaDE cohort studying care trajectories and implemented during the first SPOR phase. Marie-Ève Poitras, Unit collaborator on the first cycle demonstration project, will manage this project. She is a promising young researcher who is actively involved in Réseau-1 Québec and the Réseaux de recherche appliquée en pratiques de première ligne (RRAPPL). She will leverage the expertise she acquired with the FACILE41 study and cohort, assisted by Sara Ahmed, who received support from the Unit for the translation and cultural adaptation for PREMs and PROMs during the first phase.