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Deliverables

CLARET

Transparency- and consent-driven ethical framework designed to share research data.

CLARET is a project that studies ways to implement meta-consent, allowing patients to provide access to their health data. CLARET studies informed consent on several research projects at the same time and how often patients should receive invitations to provide consent.Using surveys and focus groups consisting of people from all levels of society, the CLARET project studies the implementation of the meta consent approach.

The Ministère de la Santé et des Services sociaux du Québec (MSSS) mandated the Unit to define and validate the parameters required to establish a transparency portal for citizens that would facilitate transparency, acceptability and access to health data for research purposes.