White paper on partnering with patients and the public

Description The objective of this document is to define the fundamental concepts and key methodological principles of partnership with patients and the public. Source Centre of Excellence on Partnership with Patients and the Public (2022). Québec, Canada. Scientific Rigor Assessment Grid When evaluating patient and public partnership tools, we used the following evaluation grid. It […]

Patient Engagement Quality Guidance

Description This guide contains seven quality measures for planning, developing, and assessing the quality of patient engagement activities and projects, and evaluating stakeholder benefits. Source Patient Focused Medicines Development (2018). Belgium. Scientific Rigor Assessment Grid When evaluating patient and public partnership tools, we used the following evaluation grid. It can also be used by the […]

Patient skills framework

Description This tool helps to identify and understand the competency (knowledge, skills, attitudes, etc.) framework of patients. Source Bureau du partenariat, Faculté de médecine, Université de Montréal (2015). Québec, Canada. Scientific Rigor Assessment Grid When evaluating patient and public partnership tools, we used the following evaluation grid. It can also be used by the research […]

Competency framework for collaborative practices and care partnerships

Description This tool helps to identify and understand the competencies of collaborative practices and partnership in care. Source Bureau du partenariat, Faculté de médecine, Université de Montréal (2015). Québec, Canada. Scientific Rigor Assessment Grid When evaluating patient and public partnership tools, we used the following evaluation grid. It can also be used by the research […]

Practical guide – Partnership strategy with patients and the public in research

Description This practical guide is designed to support the implementation of a patient partnership approach. Source Unité de Soutien aux Systèmes de santé apprenants Québec, Centre d’excellence sur le partenariat avec les patients et le public (2018). Québec, Canada. Scientific Rigor Assessment Grid When evaluating patient and public partnership tools, we used the following evaluation […]

A guide for researchers: building stronger partnerships with patients and community members

Description This guide aims to support patient engagement in research teams by detailing key experience-based learnings, barriers, and facilitators to engagement in research projects. Source Faculté de médecine et des sciences de la santé – Initiative Patients-Partenaires, Université de Sherbrooke (2022). Québec, Canada. MISSING LINK (Document in French) Scientific Rigor Assessment Grid When evaluating patient […]

Letter of commitment to financially support the involvement of a patient research partner

Description This document is a letter of commitment to provide financial support for partnership with patients, caregivers, and members of the public in a research project. Source Faculté de médecine et des sciences de la santé – Initiative Patients-Partenaires, Université de Sherbrooke (2018). Québec, Canada MISSING LINK Scientific Rigor Assessment Grid When evaluating patient and […]

Roles of Team Members in the Research Process: Defining Roles and Responsibilities

Description This tool is designed to enable conversations around roles of the team members in the research process. Source Can-Solve CKD Network. Canada. Scientific Rigor Assessment Grid When evaluating patient and public partnership tools, we used the following evaluation grid. It can also be used by the research community to determine the relevance of various […]

Patient and Stakeholder Partner Profile / Biosketch

Description This tool is designed to gather and centralize information on patient and stakeholder partners serving as key personnel or other significant contributors. Source Patient-Centered Outcomes Research Institute (2014). États-Unis. Scientific Rigor Assessment Grid When evaluating patient and public partnership tools, we used the following evaluation grid. It can also be used by the research […]

Patient and Public Engagement Planning Template

Description This template has been designed to assist with the development of patient engagement plans for health research. It can also be used to plan other engagement projects with the patients and public. Source Newfoundland and Labrador SPOR SUPPORT Unit (2016). Newfoundland and Labrador, Canada. Scientific Rigor Assessment Grid When evaluating patient and public partnership […]